European Conference on Rare Diseases & Orphan Products

European Conference on Rare Diseases & Orphan Products is a two-yearly rare diseases congress organized by EURORDIS-Rare Diseases Europe, co-organised by Orphanet.

OrganizerEURORDIS-Rare Diseases Europe, co-organised by Orphanet
FieldRare Diseases
HeldEvery two years
Official websitehttps://www.rare-diseases.eu

The European Conference on Rare Diseases & Orphan Products (ECRD) is organized by EURORDIS-Rare Diseases Europe, co-organised by Orphanet. It is a continent-wide conference in rare diseases. ECRD takes place every two years. ECRD is a patient-led rare disease policy event in Europe. The 2026 conference in Prague drew more than 700 participants. The official website of ECRD is https://www.rare-diseases.eu.

Editions

EditionDatesCityVenueParticipants
2026700

Questions and answers

Who organizes ECRD?

ECRD is organized by EURORDIS-Rare Diseases Europe, co-organised by Orphanet.

How often does ECRD take place?

ECRD is held every two years.

How many people attend ECRD?

ECRD 2026 in Prague drew more than 700 participants.

What is the official website of ECRD?

The official website is https://www.rare-diseases.eu.